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My ACES and Me, (part 3): "Trauma" and how it gets that way

While reading the responses to a recent blog post (Screening for ACES), an uneasy feeling started to creep up from deep within me.  I had sensed a similar reaction in me brewing up in other posts, and it is only by accident that this one served to begin to translate the uncomfortable sensations into some semblance of conscious thought and even words strung together. 

 

I will see if I can articulate these here in some half-cogent way and hope that in combination with any comments that come in response, will discover whether my uneasiness has any merit or is simply another consequence of my high ACES score.

 

The source of my unease is this: Here on ACES Connection, there are many excellent discussions regarding ‘trauma’ and the relevant merits, efficacies of responses to it, such as EMDR, and other clinical practices.  The following question, "It is safe to assume those with high Ace Scores were also traumatized as children. Yes?," posed in one of the responses to the "Screening for ACES..." blog post,  seemed to infer that experiencing ACE’s, did not necessarily meet the criteria for being ‘traumatized.’  This triggered in me the response that follows, presented here as a new blog post:

 

Yes.  I think that ACES are entirely focused on identifying, and measuring the cumulative impact of, trauma experienced by children, so it is not an assumption but an assertion.  I believe it should not even be a consideration whether or not the ACE's individually or collectively meet the clinical definition of 'trauma' in the DSM-IV, -V, or even -XIV,  I will even throw out the probably provocative statement that it may be ill-advised to do so.  

 

Establishing rigid definitions or boundaries around the infinitely diverse nuances of human experience, behavior, responses, etc., may, on the one hand, serve the purpose of helping practitioners to identify the potential issue[s] that the person in front of them presents with, and therefore, help narrow the choices of tools/interventions to bring to bear in order to support that person's passage towards health [a good purpose].  On the other hand, it makes it easier to fulfill the mandates of managed care and define what's covered by insurance, for how long, and for what rate [bad purpose]. 

 

The danger also exists that some of these clinicians, armed with their "DSM"-approved diagnoses of trauma will succumb to the inclination of viewing the folks that come before them through a rigid lens, and with an 'expert's mind.'

 

Now before I get batches of hate mail from Therapist United Against Non-Believers International (TUANBI) or some such, let me offer in my defense that I'm pretty sure that most of the clinicians that have come here to this ACES Connection community are skilled at making astute and nuanced clinical observations and treatment choices and are aware that 'one size [or treatment modality] does not fit all,' and in general, approach their work with the 'beginner's mind.'  But, there are a lot of practicing professionals out there in the world that are not as skilled or nuanced as the best of the lot, and they took the same classes, at the same august institutions, carry the same letters after their names and on their shingles, have the same number of years of practice in the field and/or logged research hours or even number of published papers, and who are simply, to the unpracticed patient's eye, indistinguishable from the best the field has to offer.  

 

This latter group of clinicians might lazily open their treatment manuals and cut and paste the predetermined treatment decisions backed by research, or else be totally sold on EMDR or yoga or brain surgery or [fill in the blank] as THE answer, and otherwise be a complete disaster for the individual person who stands before them with all the varied individual influences and individual patterns and all the other individual yadda yadda’s ...that the general populace walk around with.  All because an army of graduate student researchers cloistered in the windowless basement of a university research department somewhere at the behest of their oft-published professorial master have determined that 78.5% of females of Hungarian descent who carry an ACE score of 7 respond to the strict application of this EMDR protocol [see Appendix H] at a 94% improvement on the MENSA scale [see Figure 36.b].  

 

Who would you like to be the first Hungarian female to walk into that therapy room?

 

I think that one of the beautiful things about the ACES work and maybe part of its power is that it combines acute observational science with an allowance for the nuances that make up the human condition.  It began, after all, with Dr. Felitti’s initial conversations with a few individuals challenged by obesity and latter progressed to in-depth pscho-social interviews with patients in the medical setting.

 

One’s ACE score is not dependent on the dosage factor of any individual ACE.  It makes no distinction between being physically abused and having a depressed caregiver.  It does not make a value judgment between losing a parent tragically in a car accident or via an amiable divorce.  It doesn't care if the person was sexually abused once in their childhood or twice every week over a seven-year period.  Each one of these experiences adds up to the single and simple “Prime” number 1.  There is something elegantly pure about that.  Full stop.

 

I draw this parallel to one of the basic concepts of mathematics purposefully.  From a recent (2/2/15) New Yorker profile of Yitang Zhang, a solitary, part-time calculus teacher at the University of New Hampshire who received a MacArthur award in September, for solving a problem that had been open for more than a hundred and fifty years, I quote:  

 

“…The problem that Zhang chose, in 2010, is from number theory, a branch of pure mathematics. Pure mathematics, as opposed to applied mathematics, is done with no practical purposes in mind. It is as close to art and philosophy as it is to engineering....The British mathematician G. H. Hardy wrote in 1940 that mathematics is, of 'all the arts and sciences, the most austere and the most remote.' ....Hardy believed emphatically in the precise aesthetics of math. A mathematical proof, such as Zhang produced, 'should resemble a simple and clear-cut constellation,' he wrote, 'not a scattered cluster in the Milky Way.' Edward Frenkel, a math professor at the University of California, Berkeley, says Zhang’s proof has 'a renaissance beauty,' meaning that though it is deeply complex, its outlines are easily apprehended. The pursuit of beauty in pure mathematics is a tenet. Last year, neuroscientists in Great Britain discovered that the same part of the brain that is activated by art and music was activated in the brains of mathematicians when they looked at math they regarded as beautiful'….” [See: http://www.newyorker.com/magaz...02/02/pursuit-beauty ]

 

I believe that Dr. Felitti’s ACES work, like “…Zhang’s proof has a ‘renaissance beauty,’ meaning that though it is deeply complex, its outlines are easily apprehended….”  

 

Perhaps the creeping little fear I referenced at the beginning of this post is that in growing the ‘applied’ science of ACES too quickly, too ardently, we may lose what can be gained and learned from the ‘pure’ science of ACES…the conversations, the shared stories, that connect the person with an ACE Score of 1 to the person with a score of 7.  There is ‘beauty’ therein not unlike that found in pure mathematics.

 

The power from ACES comes from the fact that it makes such a critical, life changing, society changing, economy-affecting issue accessible to the man on the street and any person that walks into that (hopefully informed) general health practitioner's and (hopefully competent) clinician's office.  And that simple one-on-one conversation, scientifically informed, would start a shared journey of inquiry on the quest for the ACES survivor’s health and happiness.

 

Now that would be beautiful.

hamlet

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Tina- I live near Dartmouth Medical School which abuts the town where former Surgeon General C. Everett Koop, M.D., retired. Koop did a "continuing ed series", just before retiring at Geisel School of Medicine/Dartmouth on "Bedside Manner", aside from other presentations. I was led to believe it wasn't all about how someone talked to a patient. A significant part was how they LISTENED, and made eye contact. Perhaps it was videotaped, and you could share it with your psychiatrist. Absent that, the Health Law Project Library Bulletin, from U. of Penn, about 1977, had a cover article by a Family Physician who wrote about 3 patients who taught him things he wished he'd learned [wished it had been included in the curriculum] in medical school. Maybe it could help your psychiatrist realize that not everything gets covered in medical school, and perhaps  the American Council on Medical Education can at least admit that, if not take "corrective action".

Cissy reiterated a point I noted elsewhere in ACEsConnection. There may be more than 10 types of ACEs/Toxic Stress (I believe Tina added at least two: one being "Medical Trauma"-such as when a child is having something like a Tonsillectomy, or circumcision, and while frightened, fights the gas anesthesia mask being applied (ether, in my day), or being "restrained" [preventing Flight], and a parent is asked to help hold the child down, as the mask is applied [I "plaigerized" this one from pages 248-249 of Peter Levine's book: "Waking the Tiger: Healing Trauma"], or to hold the mask, and that's the last face the child remembers seeing, until they're completely "out of the anesthesia" after the surgery and "medical recovery" is completed. The child may not recognize his parents until the anesthesia completely wears off. I developed an aversion to ether smelling vapors as an early adolescent, while I built model cars, that are assembled with glue.

My other proposed ACE/Toxic stress may be unique to North America, as parents in Scandinavia are given [?paid?] time off from their jobs for nine months after birth. If both parents had to work, before an adequate bonding had begun, might that at least contribute to an "attachment disorder"....? ? ?

Dear Edwin,

If I understand your post, my gut response is:  Every ACE I've ever heard of would be traumatic to me. To me, everything on Dr. Felitti & Dr. Anda's list is at least scary if not terrifying to a child, Even just the absence of a father has a very bad impact on the mother, whatever her own mothering style, and makes it very difficult for mother and child to attach; that's traumatic right there.

After four years of deep attachment therapy, one thing I've learned: if it scares a child, that's trauma.

The first time my shrink looked me in the eye and said, "Parents are supposed to protect you and make you feel safe!" I bawled for a week.  Because I never heard of such a thing and my experience was the opposite.

Humans -- almost unique among mammals -- have children who are weak and helpless for a dozen or more years precisely because human children need to feel protected, loved, and nurtured by two parents (not one) for the child's brain stem to develop harmoniously. 

If the adults who are biologically designed to protect, nurture, and love do not do that  - or do something opposite - that's at least biological trauma.  To me it was a psychological holocaust. 

And as I frequently say: "Nobody beat me or raped me! What's wrong with me?"

The answer is, as Bessel van der Kolk elaborated at great length in his May 2013 Yale speech: "merely" even just emotional abuse and neglect can cause some of the worst trauma he's seen.

Kathy

Edwin,

This was a great piece and has me thinking a lot. I think, for me, one of the reasons I respond and resonate so deeply with the ACE stuff is because it's personal and it's not.

Lots is covered, but in a yes/no way and those with high ACE scores aren't connecting over one thing only (adult child of alcoholic, abuse survivor or someone with PTSD). There are many things and it's the way they interplay that may cause ripples.

For me, it's very specific and very general at the same time, factual but without being labeling, sensitive without getting super detailed. 

My father left before I was 1 and if alive (last heard) a homeless drunk. That impacts my life. Not because he was present as an alcoholic for long but because his absence had impact. But it's not something easy to quantify. His absence wasn't "traumatic" in the way I feared for my life but it had impact and in some ways opened the door for other trauma (step-family, etc.).

For me, the qualifying of something as traumatic isn't always the best way of showing what had lasting impact or shaped the child views and beliefs I carry into the adult world I now inhabit.

With the ACE, there are a whole host of things (and some not included in the 10). But it's strangely comforting because it's the way the numbers have a cumulative effect on anyone if there are lots. Logical. Mathematical almost as well as deeply personal.

I say abuse was the peanut butter and neglect the jelly of childhood. Sometimes it does and sometimes it doesn't matter what the particulars are. It depends on the situation. 

Anyhow, i'm glad you posted

Cissy

Thanks for posting this, Edwin. Very thought-provoking. And thanks to Grace, Robert, Brenda, Cherie and Darby for your comments. I also believe that an important lesson from the ACE Study is how important it is to listen to a person's story and acknowledge it, their pain, and their strength in taking a leap of trust in the telling, and that the person who listens must be aware of their own ACEs -- or, if they have none or few, understand their lucky draw in the universal lottery, as Dr. Nancy Hardt calls where and to whom we're born -- to be able to provide informed guidance to help the other person on their healing journey.

 

Great conversation starter.  ACES has taken 20 years to get up and running.  I think you are right, though, that we need to take some care about how we are using this information.  Focusing on parent education, I am looking at how to use this information to inform parents about the "how they got here" and also how they can help their children have lower scores.  Now, how to do that with sensitivity and not start therapy is another question, but the medical clinics are bravely going there.  A lot of parents are responding to ACES information by saying, "Why didn't someone tell me this before!"  So, we have to be careful not to withhold information, but again, to use it well. 

I found myself reexamining some "sequential" similar 'traumas'-and realized the second "incident" [age 16] didn't really "traumatize" me, even though it was potentially "life threatening". I didn't formally count the number of times I've been shot at with a firearm, but a 28-30 inch oak tree, between the street and the sidewalk, where I'd been walking in that urban neighborhood, was a pretty effective shield at that second incident, and quite the "coping resource" (Get out of the line of fire, and/or "Take cover!"), and a contributor to my "Resilience" building  (I thought I "coped" rather well, that time!).

Thank You, Edwin, Darby, Cherie, and Brenda, for the clarifications!

Edwin,

I took absolutely NO offense to your reference at all.  As an older student, I am able to put it all in perspective.  There's so much the ACES Connection has to offer mental health professionals.  Of COURSE I am encouraging others to join!

Thanks for writing such a realistic and holistic post about ACEs and their meaning.

take care,

Brenda Gregory Yuen

Thanks Brenda.....your response warms my heart, and I a glad that you did not take offense to my graduate student reference.  I often use hyperbole to make a point.  Some people get it and some people don't.

 

Also, I hope you encourage others who you cross paths with on your educational and practicing journey to sign onto this ACES Connection community of practice.

 

Cheers, edwin

As a graduate student in one of those veritable pristine educational institutions, I am bringing an honest, down-to-earth approach to the discussion (and education) surrounding ACEs, trauma, and the implications on future clients.  I have never thought of translating ACE scores into DSM-V diagnoses.  People are so much more than either of those things.  I see ACEs as an opportunity to educate someone who has been traumatized so that they don't pass that trauma down, and don't buy into the traumatic lifestyle that was modeled for them when they were growing up.  I grew up surrounded by such trauma.  My children are NOT growing up that way (thanks to my education about ACEs and resilience).  There's a beauty and a power in ACEs information that goes unnoticed and under-appreciated by so many.  Knowing about ACEs and resilience has impacted my life and my way of being.  I appreciate this post so much.  As I prepare to enter the clinical field of mental health counseling, I hope to bring ACEs and resilience education to every client I encounter.  It's a very powerful and empowering tool for change.

Brenda Gregory Yuen

Thanks Darby...
 
The immediate responses to trauma, or a traumatic event, can effectively change the equation on what the ultimate outcome is.  For the youngest children, whose brain architecture is being built in the early (0-5) years of life, having a caregiver able to step in and make a huge difference.  As noted in an issue brief, "The Impact of Early Adversity on Children's Development," from the Center for the Developing Child at Harvard [attached below], 
 

"...Chronic stress can be toxic to developing brains. Learning how to cope with adversity is an important part of healthy child development. When we are threatened, our bodies activate a variety of physiological responses, including increases in heart rate, blood pressure, and stress hormones such as cortisol. When a young child is protected by supportive relationships with adults, he learns to cope with everyday challenges and his stress response returns to baseline. [This is called positive stress.]  Tolerable stress occurs when more serious difficulties, such as loss of a loved one...are buffered by caring adults who help the child adapt, which mitigates the potentially damaging effects of abnormal levels of stress hormones. When strong, frequent, or prolonged adverse experiences such as extreme poverty or repeated abuse are experienced without adult support, stress becomes toxic, as excessive cortisol disrupts developing brain circuits...." 

 

 

Originally Posted by Darby Penney:

I think one of the most misunderstood parts of the definition of trauma is that it is a response to a violent or otherwise threatening event or set of circumstances that overwhelms one's ability to cope.  Each of us has different coping resources (and each of our coping abilities may vary from day to day).  Therefore, just experiencing a violent event or having a high ACE score does not result  in a trauma response if one has the ability to emotionally cope with the event. I'll give an example from my own life. I was physically and emotionally abused as a child and I still work to undo the results of my trauma responses to those circustances.  As an adult 30 years ago, I was raped by a stranger on the street at knife point.  I did not have lasting trauma from that event because, within 12 hours, worked with an energy healer who helped me discharge the enegative energy associated with the attack. So the harmful event or cicumstance does not equal trauma; the circumstances of having one's coping resources overwhelmed is what causes trauma.

 

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The conversation is everything. As the "story-teller" of our experience, we open our heart, hopefully, to a "story-listener". We recount hurts that cut deep deep and raw into the gullies of the self. The listener - the clinician - can be like an observer behind a camera, pen in hand, writing notes. Or a tender hearted listener and tender-minded listener, bearing witness. 

I think one of the most misunderstood parts of the definition of trauma is that it is a response to a violent or otherwise threatening event or set of circumstances that overwhelms one's ability to cope.  Each of us has different coping resources (and each of our coping abilities may vary from day to day).  Therefore, just experiencing a violent event or having a high ACE score does not result  in a trauma response if one has the ability to emotionally cope with the event. I'll give an example from my own life. I was physically and emotionally abused as a child and I still work to undo the results of my trauma responses to those circustances.  As an adult 30 years ago, I was raped by a stranger on the street at knife point.  I did not have lasting trauma from that event because, within 12 hours, worked with an energy healer who helped me discharge the enegative energy associated with the attack. So the harmful event or cicumstance does not equal trauma; the circumstances of having one's coping resources overwhelmed is what causes trauma.

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