Hello again.  This is a revision to my previous post,   Some language is repeated for first-time viewers. 

 Having only this year read about the ACEs Study, I am new to this website.  Originally, I came here to find personal stories, similar to mine, to see how others with seven ACEs have fared in life. Now I am looking for ACEs survivors to contribute their stories to a book I am proposing.   It would include a primer on the ACEs Study and subsequent movement, a brief autobiographical section, and a discussion of how the two external forces, trauma and resilience, influenced the academic, professional, social, and medical outcomes in our lives so far.  Internal factors, such as genetic predispositions should also be considered.  Finally, I would like to include a discussion of the relief I have experienced since learning what a qualified success I have become. 

My hope is to share with other ACEs survivors the good news that, if they feel they have fallen short in life, they are a much bigger success than they realize.  My first thought was to approach a prestigious University Press with a book proposal. But it could take years for me, a retired marine biologist, to reach the level of expertise Ivy League Editors expect and, this may not be the best way to reach my intended audience. I have decided that a better format would be a collection of personal stories with chapters on ACEs and Resilience.  Multiple contributors would avoid the appearance of a single author fishing for sympathy, advancing a personal agenda, or boasting.  Rough calculations indicate that there are only about two million Americans over age 18 with 7 or more ACES, fewer than that if you factor in shortened longevity.  Finding interested writers may be a real challenge.  I thought perhaps with all your ACEs connections, someone here might be or might recommend a good prospect or prospects.

If this site has private messaging, I would be glad to provide anyone interested with more details about my experience.  I will look forward to hearing from you.

Original Post

10 ACEs here too. I'd also be happy to help. I have written my memoir. I self-published. I put all my journals (journaling was part of my therapy) in book form. It was all to heal myself. I certainly understand the writings from several will avoid the impression of one seeking sympathy concept. Since I wrote my memoir I have written many articles. I just posted them on social media. I wasn't seeking to gain status or anything. Just wanted my life lessons written somewhere because writing outlasts us. You can find them on LinkedIn,  and FB. I have one written here on ACEsconnetion. FB titles are Ruth Rondon, Ruth Rondon on Human Trafficking and Human Trafficking Elearning. Let me know if I can help going forward. 

 

Greetings Charles,

I’m intrigued by your book concept and would be interested in sharing my personal and professional experiences as a survivor of ACEs (score of 9), and as a Preventionist in San Diego who has had the opportunity to not only learn about resilience through healthier relationship behaviors, but has created curricula and led workshops to help others (adults and youth) develop the same skills.

I am also a writer who has written multiple pieces (personally and professionally) regarding trauma and healing, as a result of child abuse, sexual assault, teen dating violence, domestic violence, and stalking.

Looking forward to hearing from you! Thank you for showing up for YOUth... the YOU within and youth without.

Marcella Maggio

Hi -- I'd be happy to help as well. I'm a survivor with a dissociative disorder that allowed me also to live a life not knowing about my ACEs (I'm a 6) until I was in my 50s.  Also working on a manuscript and have published articles and presented at conferences to spread the word about ACEs and the mental health consequences. 

Since you are newer to this site, let me recommend the BOOKs community, where they highlight new (and older) resources. If you have not yet found Childhood Disrupted by Donna Nakasawa, I recommend it highly. And Dr. Nadine Burke Harris' The Deepest Well is also helping to spread the word, especially in the medical community.   My favorite more scientific books are Bessel van der Kolk's The Body Keeps the Score and Steven Porges' Polyvagal Theory.

Looking forward to more advocacy.

If you write a book, can you have a section on the types of attachment that contribute, the emotional dysregulation that goes along, and ...yes indeed, a ton of information is needed about that sneaky phenomenon called dissociation.. and also the inter-generational mechanisms of transmission because these interrelated components of amassing a high ACE Score (oh and please include how psyche drugs can never take all these physiological and biological adaptations away with a chapter on psychiatric re-traumatization - and how it can be dehumanizing, cold and can easily lead the unaware trauma survivor away from self discovery and healing) are a lot more common than many of us know. 

It would also be great if some synopsis of the infant work (Ed Tronick, Beatrice BeeBe, Daniel Stern) were included and the work on the development  of personality problems too - those start in infancy and are highly related... 

I liked Peter Fonagy - Affect Regulation, Mentalization and the Development of Self

Brown and Elliott Attachment Disturbances in Adults

Frank Putnam  “Dissociation in Children and Adolescents” and  “ The Way We Are: How States of Mind Influence Our Identities, Personality and Potential for Change“

Beatrice BeeBe “The Mother-Infant Interaction Picture Book Origins of Attachment” 

Winnecott “Thinking about Children” 

Masterson “The Narcissistic and Borderline Disorders”

Van der Hart “The Haunted Self”

Pat Crittenden “Raising Kids” 

Schore “Affect Regulation and the Origin of Self” and “Right Brain Psychotherapy”

Daniel Stern “The Interpersonal world of the Infant.”

Seburn Fisher “Neurofeedback in the Treatment of Developmental Trauma”

and even taking a look at Robert Whitaker “Anatomy of an Epidemic”

and Gould “Wonderful Life, The Burgess Shale and the Nature of History”  

 

I actually think this might be a good idea... a collection of voices and interesting stories by interesting people who decided, in some cases because there was no other choice, to embark on “ ‘The Hero’s Journey’ towards a Life worth Living” no matter where that journey leads or where that road might go.... It takes a lot of courage to Embark on the Hero’s Journey...a Journey peppered with real world insights and pearls of wisdom for those who are just coming of age and seeking desperately to find their own path  

Charles-Thanks for your idea sharing. I really like how you mention your hope is to  share with others with high ACES that they are much more resilient and remarkable than they know. My add is that there is also freedom and hope in having the information as motivation to take steps to counteract the negative impact. Would also be interested in learning more about your chosen profession and how that intersects with ACES score. Looking forward to the conversation. 

I have been disabled since 1995 because of what happened to me in childhood. I've spent the time since healing and writing. I finally began a blog in 2016 that has grown into an internationally known site and named number 12 by Buzzfeed in ranking for the best blog site about Dissociative Identity Disorder, my diagnosis. ACEs have been a huge influence on my life and my chosen profession, freelance writer.  I've survived several suicide attempts, a major stroke, and breast cancer all connected to the ACEs from childhood yet I am still going strong. My story is a success story of hope and resiliency that I try to share so that others will be helped along their healing journey.

Lori Anne Thompson posted:

Also ACE 10. Happy to help as well. LA

Hello Lori.  I am continuing to communicate with other respondents through email.  It is most convenient for providing weekly updates all at once.  If you are still interested in telling your story, please send your email address to me.

Cheers,
Chuck Sultzman

Betsy Doud posted:

Charles-Thanks for your idea sharing. I really like how you mention your hope is to  share with others with high ACES that they are much more resilient and remarkable than they know. My add is that there is also freedom and hope in having the information as motivation to take steps to counteract the negative impact. Would also be interested in learning more about your chosen profession and how that intersects with ACES score. Looking forward to the conversation. 

Hello Betsy.  My career path was an interesting one to be sure.  It would take a while to explain.  Are you interested in telling your story?
Chuck

Natalie Kirk posted:

I would be glad to help.  ACE = 7, love to write, looking for ways to contribute.

Hello Natalie.  

I am continuing to communicate with other respondents through email.  It is most convenient for providing weekly updates all at once.  If you are still interested in telling your story, please send your email address to me.

Cheers,
Chuck Sultzman

Marcella Maggio posted:

Greetings Charles,

I’m intrigued by your book concept and would be interested in sharing my personal and professional experiences as a survivor of ACEs (score of 9), and as a Preventionist in San Diego who has had the opportunity to not only learn about resilience through healthier relationship behaviors, but has created curricula and led workshops to help others (adults and youth) develop the same skills.

I am also a writer who has written multiple pieces (personally and professionally) regarding trauma and healing, as a result of child abuse, sexual assault, teen dating violence, domestic violence, and stalking.

Looking forward to hearing from you! Thank you for showing up for YOUth... the YOU within and youth without.

Marcella Maggio

Hello Marcella.  

I am continuing to communicate with other respondents through email.  It is most convenient for providing weekly updates all at once.  If you are still interested in telling your story, please send your email address to me.

Cheers,
Chuck Sultzman

Alyson Kohl posted:

I would be glad to help.  Have been thinking about writing as well.  ACE = 9 plus other trauma as well.

Hello Alyson.  

I am continuing to communicate with other respondents through email.  It is most convenient for providing weekly updates all at once.  If you are still interested in telling your story, please send your email address to me.

Cheers,
Chuck Sultzman

Ruth A Rondon posted:

10 ACEs here too. I'd also be happy to help. I have written my memoir. I self-published. I put all my journals (journaling was part of my therapy) in book form. It was all to heal myself. I certainly understand the writings from several will avoid the impression of one seeking sympathy concept. Since I wrote my memoir I have written many articles. I just posted them on social media. I wasn't seeking to gain status or anything. Just wanted my life lessons written somewhere because writing outlasts us. You can find them on LinkedIn,  and FB. I have one written here on ACEsconnetion. FB titles are Ruth Rondon, Ruth Rondon on Human Trafficking and Human Trafficking Elearning. Let me know if I can help going forward. 

 

Hell Ruth.  

I am continuing to communicate with other respondents through email.  It is most convenient for providing weekly updates all at once.  If you are still interested in telling your story, please send your email address to me.

Cheers,
Chuck Sultzman

Hi Jane.  I am so glad you took an interest in this project.  Yes, there is some interest.  It will be easy to get others to share their stories.  The problem I am thinking through now is how to address ACEs Science in the same book.. I have decided, after reading each contributor's story, to have them write a section on the aspect of the ACEs study that is most relevant to their story.  Then the general ACEs section will be a good set up for the stories themselves.

Then, for continuity and consistency, when the stories are in (and much, as you might guess, has already been written) each contributor will review the other's, make suggestions, correct typos etc.  I have been in touch with Dr. Felitti and he has agreed to help.  This is his baby and I, having had this happen to me, do not want to stray from his original message and intentions.

Thank you again Jane.  I hope we can keep in touch through this process.  If you'd like, I could add you to the list of email recipients to keep you informed about our progress.  If there's a way to do group mailings on ACEsconnection, I have not found it.  So, send me your email address.

Chuck Sultzman

  

Ugh, sorry Shirley but having issues with this thread. Basically, My perspective or stage in life is around “getting it,” firstly. What abuse really is or was for me as scapegoat and learning about developmental trauma and being quite positive i or drs. weren’t quite on the right track. I really wished to be cuz it seemed indicative of the times and I hoped any trauma or “stuff” was neatly settled by a stay at Sierra Tucson at 23, Survivors Week at the Meadows (31) others...at 40 I did a trauma timeline at Pias Place and bodily trembled or shook with old thought of “they’re gonna kill me or might.” I left against medical advice but I couldn’t take the unresolved stuff and wanted it over. I wasn’t doing it anymore and doubted anything and everyone. At 47, the ACE thing illuminated a perspective where I didn’t feel it was blame but rather giving back some of the responsibility where it was meant, even though no one else in family had a “problem.” Etc.  I do believe the “evil mom” issue must be brought to light or destigmatized to help. Instead of shunned. We need to respect and teach about sensitive individuals as they are valuable but require different rearing. Only success is I became willing to learn (attachment, etc), again and have a thread of hope but the cost has been huge and I support developmental trauma disorder in DSM...but my experience as a child would have never revealed issues as they were “my fault,” or deep embarrassment and shame would never have let me tell a dr. my mom tried to burn my hair off as she knelt on me because-I was not to play with matches.-

don’t know if you want my cautionary tales and roaring roller coaster story as it’s not anything I would consider success except I guess I’m learning my own-bravery without artificially producing it thru high risk. It’s mine. So I’m in the works, I hope

Charles, I will be more than happy to help with publishing the book. Kindle Direct Publishing (KDP) is the platform I've used in the past. You can buy services from KDP such as editing and proofreading at a reasonable price. It would be self-published though and you would need to either get the word out yourself with the help of the other authors or hire someone to do it for you. Let me know if you need anything or have any questions. Shirley 

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